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STORIES & POETRY 2



My Name Is Fibromyalgia

Hi. . .
My Name is Fibromyalgia, and I'm an Invisible Chronic Illness. I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over. Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay!

I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day

Your family, friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a "Normal" person, and can't remember what you were going to say next!

In closing, (I was hoping that I kept this part a secret), but I guess you already found out. . . the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia. .. Except the minority of us, who like me, have support from their husband and their immediate family.

Terri
Email: Terfm@aol.com


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Puppies For Sale

A store owner was tacking a sign above his door that read "Puppies For Sale." Signs like that have a way of attracting small children, and sure enough, a little boy appeared under the store ownerís sign. "How much are you going to sell the puppies for?" he asked.

The store owner replied, "Anywhere from $30 to $50."

The little boy reached in his pocket and pulled out some change. "I have $2.37," he said. "Can I please look at them?"

The store owner smiled and whistled and out of the kennel came Lady, who ran down the aisle of his store followed by five teeny tiny balls of fur. One puppy was lagging considerable behind. Immediately the little boy singled out the lagging limping puppy and said, "Whatís wrong with that little dog?"

The store owner explained that the veterinarian had examined the little puppy and had discovered it didnít have a hip socket. It would always limp. It would always be lame. The little boy became excited. "Thatís the little puppy that I want to buy."

The store owner said, "No, you donít want to buy that little dog. If you really want him, Iíll just give him to you."

The little boy got quite upset. He looked straight into the store ownerís eyes, pointing his finger and said, "I donít want you to give him to me. That little dog is worth every bit as much as all the other dogs and Iíll pay full price. In fact Iíll give you $2.37 now, and 50 cents a month until I have him paid for.

The store owner countered, "You really donít want to buy this little dog. He is never going to be able to jump and play with you like the other puppies."

To this, the little boy reached down and rolled up his pant leg to reveal a badly twisted, crippled left leg supported by a big metal brace. He looked up at the store owner and softly replied, "Well, I donít run so well myself, and the little puppy will need someone who understands!"

Dan Clark, from Chicken Soup for the Soul


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THE GOOSE STORY

Next Fall, when you see Geese heading South for the Winter....flying along in a "V" formation...you might consider what Science has discovered:

As each bird flaps its Wings, it creates an Uplift for the bird immediately Following. By flying in "V" formation the whole flock adds at least 71% greater flying range, than if each bird flew on its own.

PEOPLE WHO SHARE A COMMON DIRECTION AND SENSE OF COMMUNITY CAN GET WHERE THEY ARE GOING MORE QUICKLY AND EASILY BECAUSE THEY ARE TRAVELLING ON THE THRUST OF ONE ANOTHER.

When a goose falls out of Formation it suddenly feels the Drag and Resistance of having to go it alone....and quickly gets back into Formation to take Advantage of the lifting power of the bird in front.

IF WE HAVE AS MUCH SENSE AS A GOOSE WE WILL STAY IN FORMATION WITH THOSE WHO ARE HEADED THE SAME WAY WE ARE.

When the Head Goose gets tired it rotates back in the Wing...and another goose flies Point.

IT IS SENSIBLE TO TAKE TURNS DOING DEMANDING JOBS WITH PEOPLE OR WITH GEESE FLYING SOUTH Geese honk from behind to Encourage those up Front to keep up their Speed.

WHAT DO WE SAY WHEN WE HONK FROM BEHIND?

Finally....and this is important, when a goose gets sick, or is wounded by Gunshots, and falls out of Formation, two other Geese fall out with that goose and follow it down to lend Help and Protection. They stay with the Fallen Goose until it is able to fly or until it Dies; and only then do they launch out on their own or with another Formation to catch up with their Group.

IF WE HAVE THE SENSE OF A GOOSE WE WILL STAND BY EACH OTHER LIKE THAT.

Author Unknown.


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Hugging

Hugging is healthy It helps the immune system, cures depression, REDUCES STRESS and induces sleep.

It's invigorating, rejuvenating and has no unpleasant side effects. Hugging is nothing less than a miracle drug.

Hugging is all natural. It is organic, naturally sweet, has no artificial ingredients, non-polluting, environmentally friendly and 100 percent wholesome.

Hugging is the ideal gift. Great for any occasion, fun to give and receive, shows you care, comes with its own wrapping and of course is fully returnable.

Hugging is practically perfect. No batteries to wear out, inflation-proof, non-fattening, no monthly payments, theft-proof and non-taxable.

Hugging is an underutilised resource with magical powers. When we open our hearts and arms, we encourage others to do the same.

Think of the people in your life, Are there any words you'd like to say? Are there any hugs you want to share?

Are you waiting and hoping that someone else will ask first?

Please don't wait! Initiate!

Take care.


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This is a letter written by a woman who has Fibromyalgia TO a person who DOES NOT have Fibromyalgia:

 

Having FMS/MPS means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about FMS/MPS and its effects, and of those that think they know; many are actually mi-informed.

To those of you who wish to understand...these are the things that I would like you to understand about me before you JUDGE me.

-Please understand that being sick doesn't mean I"m not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit, I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about school and work and my family and friends, and most of the time I'd still like to hear you talk about yours too.

-Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things.

Please don't say, "Oh, you're sounding better!" I am not sounding better, I am sounding happy. If you want to comment on that you are welcome.

-Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I manage to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you are either paralysed, or you can move. With this one it gets more confusing.

-Please repeat the above paragraph substituting, "sitting",. "walking", "thinking", being sociable" and so on....it applies to everything. That's what FMS/MPS does to you. -Please understand the FMS/MPS is variable. It is quite possible (for me it is common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!" If you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do no take it personally.

-Please understand that "getting out and doing things" does not make me feel better, and can often make me seriously worse. Telling me that I need a treadmill, or that I just need to loose (or gain) weight, get this exercise machine, join this gym, try these classes...may frustrate me to tears, and is not correct....if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the exercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder.." Obviously FMS/MPS deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage that good and could result in recovery time in days or weeks or months from a single activity.

Also, FMS/MPS may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. -Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now--it can't be put off or forgotten just because I'm out for the day (or whatever). FMS/MPS does not forgive. -If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself more sick not better. If there was something that cured, or even helped, all people with FMS/MPS would know about it. This is not a drug company conspiracy, there is worldwide networking (bot on and off the Internet) between people with this disease, IF SOMETHING WORKED WE WOULD KNOW.

-If after reading this, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll take what you said and discuss it with my doctor. In many ways I depend on you--people who are not sick--I need you to visit me when I am too sick to go out...Sometimes I need you to help me with the shopping, cooking or cleaning. I may nee you to take me to the doctor, or to the physical therapist. I need you on a different level too....you're my link to the outside world...if you don't come to visit me then I might not get to see you...and, as much as it is possible, I need you to UNDERSTAND ME.

(This is based on an open letter created by Bek Oberin, and has been modified for FMS/MPS.) Fms@tidalweb.com



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Feelings

I want to go out and play in the sun,
dance in the rain, sing and have fun.
I want to be able to do the things that I long,
play with my kids,Sing them a song.

I want to make love to my husband and friend.
To hold him close like we used to before.
I never dreamed this would be taken away,
like dancing in the rain, and not singing again.

I never imagined I wouldn't be able to make love
to my wonderful husband, my best friend and love.
People take for granted all they can do,
like walking and talking is all nothing new.

I never asked to be dealt with this hand.
I don't take for granted even the fact that I can stand.
To ask someone to really understand
is next to impossible unless they have been dealt the same hand.

I know why I have so much anger inside;
the frustration I feel and try to confide.
I want to be able to function without pain,
get ride of these feeling, even one little grain.

Submitted via e-mail by Donna Mlady
from: www.Chronicpainsolutions.com


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"Do miracles happen?"

by Michael Kellis, D.O.

I recently overheard a few colleagues debating the topic of miracles. One physician stated there was no such thing. The other said that they existed in the minds of some patients and that's why they improved "miraculously." Unfortunately there was no mention of God in their dialogue; they simply attributed any spontaneous remissions of disease to the patient's own ability to heal.

"When did God disappear from medicine?" I thought.

Over the course of my medical career, I have seen people spontaneously "heal" when those same ignoble physicians gave them no chance for survival. After interviewing literally hundreds of patients with diseases that normally either kill or significantly maim, I discovered a common denominator in all of them _ their faith in God. How they perceived their "Spiritual Father" determined their recovery.

One particular patient whom I vividly recall was assigned to me when I was a lowly medical student. The child was merely six years old and dying of an "incurable" cancer. The attending physicians told me that my goal was to simply keep the child comfortable since there was no real treatment for this rare, malignant disorder. What I remember most from this young patient was his unrelenting faith in God, even when his parents and physicians told him that there was no hope.

One evening, while doing my late-night rounds, I saw the child up in his bed laughing hysterically."What's going on?" I asked with curiosity. He stated that Jesus was in his room and that he was told not to worry because he would recover from this disease. Over the course of the next two weeks, I saw a lifeless six year old child become vibrant and healthy without the help of his physicians. As he left the hospital, he winked at me and said, "I told you so!"

The chances of his recovery were as impossible as Moses parting the Red Sea, yet he recovered.

We as physicians must remember that the power to heal is not in our hands but in God's. We should never assume that there is no hope. There is always hope as long as one believes. The true worth of a physician is not his knowledge, but his ability to instill a ray of hope in each patient.

Patients must believe that their health and recovery from disease is not determined by doctors but is ultimately in their own hands, cradled by God.

Ernest Renan, the famed writer, once said, "Experience shows, without exception, that miracles occur only in times and in countries in which miracles are believed in.'' I think it is time that all physicians and patients learn from a six year old child that we must believe in miracles. We must also believe that these same miracles aren't simply fabricated in the minds of certain patients but are ultimately in the hands of our Creator.

Yes, my fellow physicians, miracles do happen.

from: Chronicpainsolutions.com


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